Wanted to send another update and let you know that Jack got his second dose of anti-PD1 treatment today! They also decided to put in a drain to help maintain his fluid accumulation although he hasn't been drained since Wednesday a week ago - and they only pulled 500ml off him today. With the size of the tumor, he gets pretty uncomfortable pretty quick.
Last night was another sleepless night for Jack (and me). Jack was so uncomfortable, he couldn't find a good position and was back in pain. Plus he started having a cough, which just added to the pain and discomfort. Then in the middle of the night his kindle ran out of power. I had forgotten to pack his charger, not thinking we would be here for more than a day. I had packed a bag, just in case having been caught earlier this month without anything. Those who know Jack well know he never goes anywhere without his kindle and is an avid reader... Reading every chance he gets, be it waiting for appointments, pumping gas, standing inline at the grocery. this is his stress releiver and security blanket rolled into one. So this added even more stress to his already stressful night.
Luckily we got some charge on it today and his pain seems to be under control once again. Hopefully his cough will subside too. The doctor says he may have a little fluid in his lungs, but wasn't too concerned about it.
It's been another long day at Duke Hospital. Arriving at 8:50 and not leaving until 5pm. Definitely will sleep well tonight (I hope!).
Sarah heads home tomorrow to Texas to arrive just in time for her daughter Caroline's 10th birthday! We will miss her, she has been such a help and comfort to have around.
We will be heading west back to the mountains... And I have to say it will be good to be home!
We come back down here to Duke next Friday for a check up with Dr. Hanks.
Thank you for all the love, support, prayers and positive thoughts!
Peace love and hope,
Helen
2 comments:
Continuing to pray for all of y'all.... Thanks for the updates....glad he was released in time to get his next PD1 treatment!...love y'all!
Thanks so much for the update. Of all the hews, the bit about the kindle was absolutely terrifying! I can't live without it and my nook. The first thing I pack for the hospital is the charger :) t really really helps and if nothing else, helps get past the discomfort and leads to healing sleep love from reen:)
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