Last week we came down to Duke, where Jack was poked on Tuesday and had 3.2 liters drained off his abdomen; then someone called in a miracle because Jack got zapped on Wednesday for the 2 small new brain lesions they had found from the MRI on 6/27. We were assured that no one ever gets in that fast to get treatment - so someone pulled some major strings or as I believe we had some intercession from a higher place! And because of his brain lesions being treated he was set for his Anti-PD1 treatment on Thursday. Without the treatment he would have to postpone the one drug he had been hoping for since we began down this path!
The infusion took about 30 minutes and we were on our way back to Todd!
Once we arrived in Todd I dropped Jack off and ran to the store to check on things... As I pull into the parking lot what did I see? My sister MC coming out of her car! What a sight for weary eyes she was!
I found that they (Nancy and MC with the help of Linda) had planned a surprise birthday party for me! I was wondering why Jack was so adamant about taking me out for dinner on July 4th, even after I kept asking for a mulligan! My Aunt Mary Jo came in from Knoxville and surprised me on my birthday morning. The party was much smaller than originally planned because of all the unexpected events that week, but was a wonderful day that filled my heart with joy! Saturday brought MC and AMJ leaving early and Sunday took Nancy homeward bound.
Jack was feeling more tired than usual last weekend and was quite spent by Monday. Which he had similar effects last time he had radiation, so we didn't think too much of it. On Tuesday he came into the store and announced we needed to go to the ER in Boone. He had filled back up with fluid and needed to get relief. So off to Boone we went. Sarah met us in the ER with Caroline and Ella in tow. We ended up being there a few hours while they took 3.4 liters off and then made sure he was stable before letting him go. Caroline and Ella were amazing champs for having to spend so much time in a place that really has nothing to do!
Jack had emailed Dr. Hanks to tell him about his fatigue and fluid build up. Dr. Hanks set up an appointment to come and see him here at Duke this Friday. So here we are.
Jack has already started putting on fluid again, and his sodium count had dropped 10 points. This is quite concerning to Dr. Hanks and in turn us! We also found out that one of the tumors in his abdomen that was outside the stomach and pressing on the diaphragm is bigger than we thought... Much bigger. It is 6-7 inches. No wonder Jack has been in pain!
So the doctor has admitted Jack to make sure his sodium levels don't drop even more and to hopefully stabilize them. Also to get some more fluid drained off (again without dropping the levels). I think mainly its to have controlled atmosphere to keep an eye on his levels.
We need time for the new meds to do their job and shrink the tumors! Thank you for all the prayers and positive thoughts and intentions sent Jack's way.
Peace, love and hope for a cure
Helen
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