Back home again

Dear Family and Friends,

We are back home in Todd.  Yay!

We were home for a couple hours before we headed back off to the ER (boo).  The drain they had put in has to be kept in a sterile setting and Jack's bandages opened up.  I tried changing them with the ones they gave us at Duke, but they wouldn't stay closed.  So after another 3 hours in the ER - where they didn't have the needed bandages, but had something that would work - we were finally home.

The bad news/good news is that they are beginning to recognize us coming and tried their best to get us what we needed as soon as they could.  But being an ER they are busy with a lot of other pressing needs - most of which involve bleeding profusely.

Jack had another restless night because it is so hard to get comfortable and stay that way.  He has also developed a cough that exasperates intensely when he lays down.  The tumor is still wrecking all sorts of havoc on his system.  And the pain meds cause there own sorts of problems.

Today he has been a bit confused, likely caused by the combination of pain meds and lack of sleep.  He still has quite a bit of fluid gathering around his feet and calves.

I want to thank everyone who took the time to send him a card for his birthday - he is still getting them and still delights in reading them and looking at them (they are placed around our sitting area in our bedroom.  It really has brightened his days - as well as the texts and videos people have sent to wish him well!

I also want to thank the folks of Todd for all their help during this time - I don't know what I would do without you!  

I will update again soon...

peace love and hope

Helen